Recruitment for CBRS Indigenous Engagement Sessions

Background

Indigenous Initiatives are a critical part of CBRS to ensure that the unique interests and perspectives of the diverse groups of Indigenous Peoples of Canada are acknowledged, upheld, and implemented throughout all aspects of our work as we build a national strategy for brain research. 

Amplifying the unique and diverse voices of Indigenous peoples in Canada will allow for enriched brain research, as these voices have long been silenced via the colonial structures in the country. We strive to acknowledge the past (including historical injustices), recognize the present (appreciate Indigenous strengths in culture and language), and envision the future (healthy reciprocal relationships between Indigenous Peoples and Canada).  

A robust national brain initiative must encompass the vast, distinct, and rich traditional knowledge of Indigenous peoples in Canada, as well as affirm the community expertise and sovereignty of First Nations, Metis, and Inuit people.   

“Indigenous people are not well represented in brain research – brain research is not focused on Indigenous peoples, or researchers have not yet had the conversations about cultural relevance. If we do not find a way to include Indigenous people, the disparities that exist in these research domains, and accessibility to innovations and treatments may only grow”. 

– Dr. Christopher Mushquash, IKHG Member 

Who are we looking for? 

We are looking for researchers in neuroscience and mental health (especially Early Career Researchers and trainees), Traditional Knowledge Holders, and People With Lived Experience (PWLE), to participate in one of a series of 90-min Focus Groups for CBRS Indigenous Initiatives.  

These individuals do not need to be directly involved in brain research but should be able to provide insight and feedback from an Indigenous perspective, regarding our six strategic priorities: Open Neuroscience, Diversity & Team Science, Neuroethics, Platform Science, Transdisciplinary Training, and Neuroscience-AI Interface. Find out more about our priorities for Indigenous Initiatives here.

If you or you know any individuals, groups, or organizations, who might want to be involved: indigenous@canadianbrain.ca 

 

$1.5 million to develop a Canadian brain research strategy

A pan-Canadian team of researchers has secured a $1.5 million grant from the Canadian Institutes of Health Research to develop a strategy to position the advancement of knowledge about the brain as a national research priority and support the creation of the Canadian Brain Research Strategy Network. This network will coordinate Canada’s participation in the International Brain Initiative, which brings together the world’s major brain research projects.

Neurological disorders are the leading cause of disability and the second leading cause of death worldwide. The burden of neurological disorders has substantially increased over the last 25 years with the aging of the Canadian population. The coordinated efforts of brain researchers from across Canada through the Canadian Brain Research Strategy Network offers an unprecedented chance to reduce this burden and to improve the quality of life of Canadians.

The Canadian Brain Research Strategy Network is headed up by Dr. Yves De Koninck, a professor with Université Laval’s Faculty of Medicine and director of the CERVO Brain Research Centre, and Dr. Judy Illes, a professor at the University of British Columbia and director of Neuroethics Canada. The heads of 31 teams from Canada’s leading neuroscience institutes and research centres will join with them in developing the strategy. The coalition Neurological Health Charities Canada will bring the voice of Canadians affected by brain conditions to strategy development.

Several issues convinced the researchers of the urgency of developing a coordinated vision of brain research. “The first was the slow progress in the fight against brain disease,” explains De Koninck. “We’re still not able to cure or effectively treat disorders or illnesses like autism, Alzheimer’s, addiction, or depression. We believe that concerted action by neuroscience researchers will be a game-changer, just like it was for cardiovascular disease, where mortality rates have dropped 75% compared to 60 years ago.”

Another issue was the human and economic cost of brain disease. “In the course of their lives, one Canadian in three will be diagnosed with a brain disease or experience a brain injury. This often has a devastating impact on their quality of life and that of their families,” adds Deanna Groetzinger, manager of Neurological Health Charities Canada (NHCC), a coalition of organizations that represent people with brain diseases, disorders and injuries in Canada. “A 2016 study showed that neurological illnesses and mental health problems generated annual costs to the Canadian economy of some $61 billion.  In addition, the impact of the COVID-19 pandemic on stress and anxiety, particularly among health care workers and people living with brain conditions, shows just how important mental health is to our society.”

The Canadian Brain Research Strategy will coordinate Canada’s involvement in the International Brain Initiative. Like the Human Genome Project, which brought the entire scientific community together between 1988 and 2003 around the sequencing of the human genome, the International Brain Initiative will see thousands of scientists working toward a shared objective: understanding how the brain works and improving the treatments available to those suffering from brain-related illnesses. “Key aspects of the Canadian Brain Research Strategy in this regard are the ethical, legal, societal and cross-cultural importance of discoveries about the brain and their meaningful translation into practice” notes Illes. “The neuroethical piece has already grounded the formulation and execution of the Strategy.”

“Canada’s participation will focus on the brain’s plasticity, which underpins our ability to learn, remember, and adapt,” says De Koninck. “This should give us greater insight into how these processes can be disrupted and lead to brain disorders and pathologies. We also hope our collaborative, concerted approach to research will attract note. We want the Canadian way to set an example for other countries.”